A big thanks and update.

Many of you know my cancer story, so here’s a  recent recap and update. In winter of 2017 I had some ablation done on my liver. A month later a scan showed growth in 3 of the tumors. At that point the doctors said it was time for transplant. We knew this was eventually going to happen as my body could only handle so much of the radiation treatments and I’d already had surgery to help. After all the work up for the transfer I was put on the list for a liver this past August.  Then we waited and waited some more. On June 9th I received the call they had a liver for me. I went in the Hospital around 9:30 pm and at 2am walked in to the OR for the surgery. Let’s just say I don’t remember much of June. Ive had 1 hiccup along the way. I had a rare reaction to my initial immunosuppressant causing another trip and overnight stay in the hospital, but once that was corrected I felt much better. I’ve started physical therapy and I know I’m only going to get stronger with it. 

THANK YOU! THANK YOU! THANK YOU!

I have so many people to thank who are continuing to help me on a daily basis, helping with my kids and making sure they’re having a great summer, and those helping at moments notice. Also a BIG THANKS to all those who prayed and continue to. 

I start my first treatment with immunotherapy tomorrow, Friday June 3. We're praying for great results! It will take several weeks of treatment before we know any results. We thank you for continuing to pray with us!
"Now faith is being sure of what you hope for and certain of what you do not see" Hebrews 11:1

Updates, Scans and Tumor Activity

Updates, Scans and Tumor Activity

Since my last post, I've had scans every three months. Each showing my cancer has come back with no activity. The cancer wasn't gone; it was just dormant or in an inactive state. Two weeks ago I had a Gallium/Octreotide PET scan. This is a more extensive scan and it shows more detail than a traditional PET scan. It revealed one of my existing tumors is showing activity again. We met with my oncologist, last Tuesday, to discuss what this meant and what needs to be done. He shared this means my cancer is no longer considered slow progressing. This means that its not slow growing, and its not considered aggressive, but somewhere down the middle. He said he had hoped my treatments (Radioembolization, i.e. Y90 & surgery) last year would last 3-5 years before the tumors started showing activity again, but unfortunately they've only lasted around a year. We discussed 3 treatment options and he also had the transplant Dr. meet with us. We were given the options of doing a clinical trial (which would be immune therapy), liver therapy, and finally transplant of pancreas and liver.

Here is a breakdown of the options.

Immune Therapy- This immune therapy treats the body as a whole, not tumor specific. As I stated before this is a clinical trial. This medicine has not been used to treat my specific type of cancer but has shown promise in other cancers. My oncologist believes this would be a good option for me to start with. I would go in every three weeks and receive medicine for 30 minutes through IV. I would follow up with scans every 3 months to see if it is working. The immune system has a memory so if it works, it will remember when new cancer cells show up and try to fight it, as where now, my body doesn't recognize the tumors as something bad and doesn't fight it. This option does come with some possible side effects, 20% of patients showed signs of  fatigue, nausea, vomiting, joint pain and some other possible side effects I'm discussing with my Dr. The other risk with doing this or the liver treated therapy is if my cancer were to spread I would not be able to do the transplant in the future which is needed.


Liver Directed Therapy- My liver would be treated similar to how it was in the past with targeted treatment directly to the tumors. I would have the blood vessels feeding my tumors blocked with beads. Previously with the Y90 treatments they were radiation beads. We would start without radiation as not to any excess damage to my liver. The liver can only take so much radiation then I couldn't have any more. If this didn't work we would try the Y90 again 1 or 2 more times.


Liver and Pancreas Transplant- We're hoping and praying the other two options will buy us additional time before this is needed, but my doctors said that it will be needed at some point. This, as I've stated in other posts, comes with plenty of risks and we'll do this as our final resort. My quality of life will definitely change with this transplant. The transplant doctor agreed that not doing the multi-visceral transplant last year was a good choice, because seeing my progress now, they see the multi-visceral would've been too extreme in my case, at that point.

My oncologist said there is no right or wrong option to move forward with. We have decided to try the Immune Therapy. We want to exhaust all our options before doing a transplant. The goal is to balance quantity and quality of life. I can't have both, but were going to do our best to get both!
God is BIG! AMEN!

All though were not thrilled with the tumor activity, were very thankful the cancer hasn't spread and no new tumors are present. We thank you for your continued prayers and loving support through all of this.

A Year and 1 Day...

Its been a year and one day since I was diagnosed with Stage 4 Neuroendocrine Insulinoma. This year has gone so fast for me and yet very slow for others going through this with me.

I remember the day I went in to the ER. It was October 8th, 2014. My girls 4th B'day. My blood sugar had continuously dropped all morning. When it finally hit 30 I asked my mom to take me in. The Hospital ran tests and scans, and the next day transferred me to Indiana University Hospital, and then on October 14th I was given my diagnosis of cancer. I spent five and a half weeks at IU Hospital in Indy. Since then, I've been in and out of the hospital for various reasons (treatments, surgery and for pain), from short stays of one night up to stays as long as 11 days.

An update you since my last post in April:

Click here to read my last post for a more information on what's previously happened and information I'm receiving from my Drs.
http://livingrare.blogspot.com/2015/04/surgery-scheduled-and-real-conversations.html

On April 30th I had surgery to remove a third of my pancreas (which included the main tumor), some lymph nodes and my spleen. They also did a biopsy of the tumors in my liver that I had treated with radiolembolization to see if the radiation truly did kill the tumors. They found with the biopsies the tumors were still viable. My recovery from the surgery was supposed to be 4-6 weeks and ended up being 4-6 months, due to complications from the surgery. After several trips to the ER for unbearable pain, it was discovered I had a blood clot and three large sacks of fluid in my abdomen and back. This took place over a couple of months this past summer and kept me in bed majority of the time. I was given pain medicine to help control the pain and was told my body should just absorb the fluid, but I ended up being admitted to the hospital several times and finally they decided to put in a drain. As of my last scan at the end of July, I had no new tumors and the fluid and blood clot are getting smaller. Its just been in the last month or two that I've finally been able to get out of bed, and out and about. I still wear down easily and have some pain from time to time, but I'm getting stronger every day. I'm enjoying being able to spend time with my husband, girls, family and friends.

What's next:
On October 26th I will have a CT scan of my chest and an MRI of my abdomen. Followed by appointments with my radiologist and oncologist, where I'll receive the results of the scans. In my last post I wrote how my oncologist believed that the cancer has already spread to other areas in my body that only an MRI could see and not by PETCT scans. As you can imagine this makes us all very nervous to have this MRI. Although we are scared we know God is in control and we choose to believe he will take care of us no matter the outcome.

Prayer request:

• For the upcoming appts. on the 26th. This will be a long day for me, Josh and the rest of my family and friends waiting to hear the results.
• For continued daily strength and emotional states for all of us. This is just as hard on Josh and the girls. Although they are young they know their mommy is "sick." They pray for my "ouwies" everyday. They are such sweet girls! Josh has been amazing. He is a great husband and father. He takes such great care of us! I couldn't love anyone more!

I feel very blessed to have you all in my life. So many people have stepped up by sharing a kind word, visited with us, prayed with us or for us, been a shoulder to cry on or vent too, taken my children on play dates or just took them for a couple of hours, cleaned my house, ran errands for us and cooked us meals, amongst so many other things. We are truly grateful! The list could go on and on.

God is Bigger!
Jessie

Surgery Scheduled and Real Conversations

Surgery Scheduled:

Since my last post, I made the decision, with lots of prayer and thoughtful consideration, to have surgery and not have a transplant at this time. I go in this Thursday (4/30) morning to have 1/3 of my pancreas removed, along with some lymph nodes and my spleen. My time in the hospital will be about 4 days or so, depending how it all goes. While the Dr. is doing the surgery he will also take a biopsy of some of the tumors treated in my liver to see how they truly did with the last embolization treatment. I will have another PET/CT scan at the beginning of June to see how things are looking.

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A Real Conversation with my Oncologist:

A couple of weeks ago I had called my oncologist to discuss my upcoming PET/CT Scan with him. During the phone call he mentioned that after I had the surgery I might be able to join a clinical study to treat my tumors. Instantly this conversation threw me for a loop and I was completely confused. I was under the impression that my surgery and previous radiation treatments would make me considered "cancer free" for the time being. No one had actually said those words to me when discussing my treatments but that's what I just assumed. He informed me that although my last PET scan showed the tumors in my liver are dead. He said I still have cancer that's not showing up on the scans. He said no matter what treatments and surgeries I do I will always have cancer. He said that the next year will determine how aggressive my cancer is and the treatments necessary. He informed us that my liver can only handle one more round of radiation (one treatment on the left side and one treatment on the right side of my liver). He said we may need to revisit the idea of a transplant depending how things go. He's confident that when he does a MRI it will show cancer in places the PET/CT scan doesn't show. He also said that my cancer has also more than likely spread to other areas in my body and that if I did end up doing a transplant that the immunosuppressants I would be on would cause it to spread more. He said the tumors will continue to come back and grow and eventually get to a point where they can't control or treat them. This was a very real and honest conversation. I have to say I love my oncologist and although our conversations aren't always fun. I appreciate his honesty with me when I ask him questions. He's very kind and easy to talk to. This means a great deal to Josh and I.

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I continue to pray for God's healing and lots of time. I've been having more good days than bad, but I know that will flip with this up coming surgery, but hopefully only for a while. We continue to receive lots of love and support and are so very appreciative of it.

This next year will tell us a lot about my cancer, but I know God is big and He still heals!

Isaiah 53:5 (NIV)

⁵ But he was pierced for our transgressions,
    he was crushed for our iniquities;
the punishment that brought us peace was on him,
    and by his wounds we are healed.

Decisions Made ?????

People keep asking me "are you going to update your blog?" and the truth is... I've been procrastinating.... for a while.

My last radioembolization treatment went great. I was not sick afterwards like I was the first time which was wonderful! I've also had a pet scan since then that revealed all the tumors in my liver are dead from the treatment. My Dr. referred to this as a Miracle. There were no new tumors and the ones in my lymph nodes and pancreas haven't changed.

I thought my decision was made, but I'm struggling to commit to it. In my last post I said I was doing the transplant, but since then one of my doctors has talked to me several times about waiting and watching. This Dr. has also brought my case to other Drs. who also agree I should wait on the transplant, due to my age, possible complications that can come with a transplant, and life expectancy statistics that come with a multi visceral transplant. My options haven't changed. This option is just being brought up more and more, which has just confused me more about what is the best decision.

Option One:
Wait and Watch
In this option I would have the tail of my pancreas, where the main tumor is, removed, along with the lymph nodes with tumors. I would then just get scans every few months to look for possible new tumors or changes. Hopefully there would be none.

Benefits: This would not be as hard on my body as a transplant. I would have a shorter recovery time. The surgery is far less risky than a transplant.

Risks: waiting and watching; if it shows up again (they said I could have microbial tumors they can't see and might not make their appearance for up to years from now.) or spreads to any other organs I can never have a transplant if I got to a point where I needed one. I could still need a transplant at some point even if I go this route.

This option offers low risks up front but possible high risk down the road.

Option Two:
Transplant
With this option I would have my liver and pancreas transplanted and the lymph nodes removed. I would get scans with this every 6 months to a year to see if any cancer has returned. As I've said in my previous posts, they would have a liver, pancreas, stomach and intestine ready for me in the surgery in case they found anything else while they're operating. They would also remove my appendix to avoid any possible intestinal surgeries in the future.

Benefits: This option would be the best option to get any cancer they are aware of out.

Risks: There are major risks with a multi-visceral transplant, life risks during surgery or recovery, infections and lifestyle changes post transplant. I would be on an immunosuppressant for the rest of my life, which puts me at a higher risk for other types of cancer and the cancer returning. The recovery time for this would be 4-6 weeks in the hospital along with needing 24hr care post transplant for 2-4 weeks. A lot of people do fine with a transplant and I need to stay positive if this is my choice that I will be fine too. Its just scary to think of all the not so positive things that can happen.

This option has high risk up front, but could be good for me in the long run as long as everything goes smoothly.

All the Doctors are telling me its my choice and there is no right or wrong decision, but they each have their opinion as to which would meet my current need the best. They also still can't tell me what my prognosis would be with either option. I plan on going on the transplant list either way. I've completed all my transplant work ups. I will also have a consult with a surgeon to discuss the non transplant option. Josh and I are praying about both options. One option isn't necessarily better than the other. There are risks and benefits to both. I just need to decide. That is my prayer request, that I can make a decision and go with it. I need to decide quickly as I'll be on the list in a couple of weeks and I was told after that I would get the call quickly saying they have organs for me, like within a few weeks of being on the list, so I need to know what I'm going to do. Once I make the decision I need to trust the Lord is going to take care of the decision that's been made and that its all in His hands. He only wants the best for me!
`

Decisions Made

Hey all, I hope everyone enjoyed their Christmas and New Years. I spent Christmas at Disney with Josh and the girls and rang in the new year with family and friends. We had a great weather and a great time!

                                                                Josh and Peyton

me and Parker

This past Monday I met with my main Dr in Indianapolis and had further discussion about my options. Basically he talked about four options that span from just radiation in my liver and cutting out my tumor in my pancreas to the other spectrum of transplanting my liver, pancreas and removing my spleen. We went into depth over all these options. He told me how he presented my case to other Drs. to get their opinions. It was a very emotional appointment where I shared with him that I just wanted the decision made already and that I hated that I even had to make this choice. I asked him what was the best choice, ultimately to live longest, where as he replied, with a transplant. How much and what to transplant would be up to the transplant team. He shared that if I just did radiation and remove the part of my pancreas that holds the main tumor that I would live around 8 years. I was told that if I was given the option of transplant that I should take them up on it because not all people get that option. Most are given the other option. 8 years doesn't seem nearly long enough to me. By the time the appointment ended I had decided on transplant. Transplant would be done with the intent to cure but there's no guarantee. If it works I could still possibly live decades. This choice comes with its own risks though. Not all people make it out and with having two organs transplanted at once runs a higher risk of dying during surgery, around 10% or so, but this percentage is not exact. Its really a choice of early risk with the surgery but longer life span in the end, or little risk with the other surgery option, but a shorter life span. With my choice I'm trusting the Lord is in control no matter what the outcome. My next steps are to get my prep work done (more Drs. appts) in the next 2-3 weeks so I can officially get on the list. I will meet with this Dr and my Oncologist a month after my radiation to further discuss my transplant plan.

I will also be doing a second round of radiation (radioembolization) this Friday. It will be an outpatient procedure. I will go home in the evening. If it goes the same as last time I plan on being sick for about a week from it. I'm praying though it will be different this time.

Thank you to everyone who continues to reach out to us, pray for us, those who bring us meals, and those who have been so generous with their time. We can't thank you all enough. I know we've received cards, letters and gifts and I haven't always thanked everyone personally but please know we are truly grateful and we feel God's love through each one of you. We also have enjoyed receiving all the encouraging comments through this blog and social media that you leave us.

Prayer requests:
-For my radiation that it goes well and that I don't get sick like last time.
-For the decision we've come to, that it goes well and all future prep for it and surgery goes well and that I get the organs at the right time God has for me, and for the family donating these organs when the time comes.
-For Josh, the girls, my family and friends while I go through this, because truth be told we are all going through this one way or another.
-For more energy. Each day I feel different sometimes okay and sometimes not. This leaves a lot on Josh's plate and I know he is feeling extremely stressed from having to work all day and then come home and also manage our finances, the cooking, cleaning and taking care of the girls and me. I want to be more helpful. We have help but I know its still hard on him.

All my love, Jessie

December Updates

I met with the radiologist about a week ago. He said my radiation he did while I was in the hospital couldn't have gone any better. The 5 specific tumors he did the radioembolization on in my right lobe of my liver were killed and there was no damage to my liver. This was great news to hear. A small victory in this battle I'm fighting and I'll take it!
 
I plan to treat my left side of my liver at the beginning of January. A date has not been set for this. I still have not decided on a plan of action but if this works as well as my right side. I see it as a preventative of the tumors spreading while I decide.
 
We received a phone call from the nurse practitioner at the radiologist office shortly after we left. She said they were talking and they think I'm so young to do a transplant because there's no way of knowing how long the organs will last and I may have to get them replaced again after so many years. They want me to meet with another Dr. to discuss the possibility of just removing my pancreas and becoming insulin dependent and just doing radiation on my liver. However the body and liver can only handle so much radiation and I may still need to do a transplant on my liver at some point.
 
I also am hoping to get my pre-transplant appointments and testing all done before January that way if I decide to go this route all I'll have to do is ask to be put on the list. All the pre-transplant appointments and testing are good for up to a year, not that I should take that long to decide.
 
With all this being said, I'm collecting my thoughts and compiling questions. I need to call a few offices and make a few appointments before anything can be decided.
 
Thank you to all who continue to pray for my family and me. We can feel it! I continue to receive thoughtful cards, gifts and meals. I thank you and appreciate the outpouring of love on my family.
 
I'm looking forward to this Christmas season with my family and friends and an upcoming vacation with Josh and the girls. We have so much going on but we continue to look to the One who is in control and trust in Him.
 
I came across this scripture today and it speaks volumes to me. I love it!
 
Psalm 63:2-4 (NIV)

I have seen you in the sanctuary and beheld your power and your glory. Because your love is better than life, my lips will glorify you. I will praise you as long as I live, and in your name I will lift up my hands.

 

Jessie

 

This is Real

Yesterday I went for my follow up visit and met with the transplant team at IU Hospital in Indy.  They informed me that I have two options (neither seem to be great choices).

Option 1: Do the transplant of the pancreas, liver and have my spleen removed. With this option I run the risk of complications of a transplant, the cancer could come back or spread. I will take an immunosuppressant so that my body does not attack my new organs. However taking an immunosuppressant could also cause cancer to spread. The Dr.s informed me that I could take my time in deciding, but if I wait too long I run the risk of it spreading. If it spreads I was told I could no longer have a transplant. Another possibility is they get in me and have to also transplant my stomach and part of my small intestine. All these organs are connected and depending what they see or find when they get in there this could happen. They will have all these organs on hand when they do the transplant just in case. With this option they can't tell me how long I'll live because they've only done 15 of these transplants. All have had complications from the transplant and the only one they told us about that was still living has been alive for 7 years.

Option 2: Do not have the transplant and just have more radiation to my liver. With this option I could have additional damage done to my liver which could cause problems or death. Inevitably I've been told the cancer will eventually spread and I would eventually succumb to the cancer and pass away.

We asked the Dr.s which is the better option, which could I live the longest with and they couldn't tell me. They can't say I'll live longer with one over the other. This is all so rare they have no statistics to go on. Making a decision that affects my mortality is a hard choice to swallow. I think about my
Husband, my kids, my family and friends. There's just no great choice if one won't necessarily let me live longer than the other. The Dr.s can't tell me if I'll live 5 years, 10 years or longer. They just don't know. I could do the transplant and hope and pray everything goes perfect, but there's just no way of knowing how long the organs will even last if I do it. I could do the radiation and hope for the best, but eventually this will spread.


Were just praying for wisdom and discernment. God already knows what choice we'll make and what my ultimate outcome will be. As much as this all hurts (emotionally) I'll know he has a plan for my life.
Jessie


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How I'm feeling:
Emotionally: I'm hurting. Some days the fear feels crippling, but other times I'm okay. Sometimes I'm mentally exhausted from it all and I just don't want to deal with it.

Physically: I have good days and bad days. Mainly its just nausea that I'm still dealing with. Its really hit or miss when I feel this way. It comes in waves. I have some days where I'm tired, but I'm starting to feel like myself again. My sugars are staying up which is great.

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Clarification in case this helps some of you understand: I do not have pancreatic cancer or liver cancer, but I  do have cancer in my pancreas and liver. When most people hear of pancreatic cancer they are thinking of pancreatic adenocarcinoma a fast moving cancer that spreads quickly. I have a pancreatic neuroendocrine tumor that has spread to my liver. This is a slow moving cancer. It is not curable.

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PET scan: apparently the PET scan I had WAS to check for more cancer. The scan showed no cancer anywhere other than my pancreas, liver and a few nearby lymph nodes. Praise God it hasn't gone anywhere else.

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My next appointment is this coming Wednesday. I'll meet with my radiation Dr. to discuss if I'll have to do more radiation or not. I'm hoping not, because my sugars are up, but I'll find out at this appointment.

Its good to be home

Home:
These last few days at home have been amazing. I've spent my time between resting and spending it with family and friends. I've visited my friends at work, had dinner with my mom and dad in law, did a little shopping with my mom (my Dr. said I should walk the mall to build my strength back up, I think walking Target counts), taking three hour naps each day. I've spent my days with family visiting me and my evenings relaxing with my amazing husband and sweet girls. Sleeping in my own bed at night has been wonderful. Its amazing how much sleep you can get when someone isn't waking you up throughout the night to check your vitals or draw some lab work. Last night the girls and I decorated a tiny Christmas tree for their room, Frozen themed of course, complete with purple lights. They loved it, and so did I!

Thank you to all the family and friends who've been helping us out and bringing us meals. I can't express how much we appreciate it all!

Health:
I've been feeling a little stronger each day. Being home helps :) I had a follow up Drs. appointment in town yesterday with my Lafayette Endocrinologist just to make sure my Lafayette Drs. and Indy Drs. are all on the same page. I go back to Indy next week, Wednesday, to discuss my "Plan" with my Drs. and to discuss more on the transplant.

Prayer Request:
Fear- I have a lot of fear. Fear of the unknown, fear of what may or may not happen, fear of what I might miss out on if something does happen. My kids are sharing their fears too, as to be expected. Every morning when they leave for school they make sure I'll still be here when they get home and I have to promise them I will be here waiting for them. If I have a Drs. appointment they want to know if its just for a few minutes or if I'll be staying overnight. They want mommy home and I want to be home! Strength for my husband. I know all this weighs on him and he has a lot on his shoulders. He still manages our day to day life, goes to work each day, takes care of me and our girls,  and not to forget all the healthcare items he's staying on top of.

I'm asking (begging) God for complete healing in my body, to sustain my health, life and my family.

Lots of Love - Jessie

Monday Blues to Joy Bubbling Over!

HOME, SWEET HOME!
Hello!  Just a quick update on behalf of Jessie.  After 4 weeks and 5 days, on Monday, Jessie was finally able to come home from the hospital!  She is overjoyed to be home and to spend time with her family.  Although there are sure to be many upcoming appointments and potential treatment options to discuss, at this moment, she is just soaking in the loveliness and comfort that is found only at home!  Jessie's main focus is gaining strength and getting her body, mind and spirit ready for whatever steps come next.  Please continue to pray for her and Josh as they begin a new normal at home and for direction as many decisions will need to be made in the near future.

IT'S MEAL TIME!
Many (MANY!) have asked to make meals and now is your opportunity to bless Josh, Jessie and girls with your home-cooked love!  Please see the link below to be directed to MealTrain.  You will be asked to complete a profile before logging into Jessie's page.  This should only take a minute of your time and is fairly easy to complete.  Simply pick the date, what meal you wish to bring (check out their suggestions to the right of the page!) and put your contact information in the "Notes" section.

Click HERE to bring a MEAL!

For more information on how to help, please click here!

On behalf of Jessie, Josh, Peyton and Parker, THANK YOU!

Monday blues

Our hopes of leaving the hospital on Monday may not come true.  Jessie was taking off her IV last night and her sugar levels dropped in the 70 range, so she was put back on her IV.  70  isn't a bad range just not what they are wanting her to be at, the doctors would prefer her to be up around 100. So when the doctor stopped in this morning to check on Jessie he said that if her levels aren't back up by Monday they might want her to do another round of radiation before she can go home. She is very upset with this news and cant handle the thought of having to stay longer especially now that she finally was given an actual day to go home. Please pray for her levels to go up so that we can go home on Monday.
Josh

PET scans

Hello all,
Yesterday I mentioned on Facebook that I would be going for a PET scan to look for more cancer. I had the scan but turns out it was just to check the radiation went where it was supposed to go. It did! I still have to have another scan at some point to check for more cancer, but apparently I was miss informed or misunderstood yesterday, and this other scan is yet to come. I'm still hoping to go home soon. Someone actually used the word Monday with me today, so that gave me a small glint of hope it will actually happen.
Today has been a good day spent with my husband. The nausea, from the radiation,  has started to subside, which makes being here so much more bearable. I'm grateful for all the friends and family who are staying overnight with me, visiting me, sending me cards and gifts, and taking care of my kids and husband! Lots of love to you all!

I'll leave you with one of my favorites. Its was my scripture I held strong on to when we were trying to have kids. Its still my favorite and God is using it in whole new way to touch me in his journey.

Hebrews 11:1
Now faith is being sure of what you hope for and certain of what you do not see.

Jessie

Update

Thanks to everyone who have visited our blog!
Update: I had my first round of radiation this past Wednesday. I've been battling nausea ever since. Each day gets a little better but it still seems to linger. The doctors are watching my blood sugars closely in hopes I can go home within the week. They are slowly weaning me off some of my meds in hopes that I can take a once a month shot to keep my sugars up until the final plan for me is in place. At this time we have no definite plans but it seems the Doctors are leaning towards a liver transplant if not a liver and pancreas transplant. A lot more testing will be done along with more radiation on my liver before anything is decided. Your continued prayers are appreciated for my nausea to subside along with asking for wisdom for the doctors as they decide the best plan of action for me and for our wisdom to make the best decision in the end.
Jessie & Josh

Welcome!

Hello and thank you for visiting!  This blog has been established for the family and friends of Jessie Thayer.  We hope this website will allow Jessie's loved ones to remain updated on her progress and journey.  We also pray this blog will be a source of encouragement and connection for Jessie during this time.  Please visit the "Guestbook" page and feel free to leave comments and prayers for her throughout this blog.  Josh and Jessie are incredibly humbled and grateful for all of the prayers, support and encouragement.  They are overwhelmed by the love and generosity from their family, friends and even strangers offering their help and services.  If interested, please visit the "How to Help" tab for more information on what services would bless them at this time.  Josh and Jessie want to thank everyone for their well wishes and prayers as they embark on this new faith-filled journey discovering what it means to be living as the "rarest of the rare."